What is a chronic illness? A chronic illness is defined as a medical condition that is “continuing or occurring again and again for a long time” – often with no cure. Coming to terms with any medical diagnosis is challenging, no matter your age or where you’re from; having to learn new terminology and how […]
When you have a chronic illness, it’s not just the physical symptoms that affect you – it’s the mental ones as well. Whether your illness is visible or invisible, it’s bound affect your mental health. The trauma of being ill/being in hospitals/having surgeries. The loneliness. The isolation. The unpredictable nature of whether you’ll be okay […]
So it’s been a while since I last posted on this website. I started doing this blog to help others who might be in a similar situation as I was; having Ehlers-Danlos Syndrome Type 3 (Hypermobility Type) and being unable to eat due to a malfunctioning digestive system.
I’ve now been home for 2 weeks, giving me a chance to enjoy the unusually warm weather! So far, things have been going okay but there have been some incidents along the way – but as things are still very new, there’s bound to be one or two slip ups of some sort!
So it’s the day before my surgery. It’s safe to say that the nerves are really getting to me, but that’s normal I’m sure. As the hospital I will be having my surgery at is in London and I need to be there by 7:30am, mum and I will be taking the train up there […]
So it’s now 3 days before the day of my surgery. There’s a lot of things to get your head round and I’m still trying to adjust to all the changes that lie ahead with life with an ileostomy – as well as actually starting to eat again! There are a few helpful things that […]