Having a disability can affect pretty much every aspect of your life, and yes: this includes finances. How much, you may ask? Well, according to Scope (disability equality charity), disabled people spend an extra £583 a month on average (see here). Does this surprise you? It doesn’t surprise me in the least. I saw also […]
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What is a chronic illness? A chronic illness is defined as a medical condition that is “continuing or occurring again and again for a long time” – often with no cure. Coming to terms with any medical diagnosis is challenging, no matter your age or where you’re from; having to learn new terminology and how […]
Read MoreWhen you have a chronic illness, it’s not just the physical symptoms that affect you – it’s the mental ones as well. Whether your illness is visible or invisible, it’s bound affect your mental health. The trauma of being ill/being in hospitals/having surgeries. The loneliness. The isolation. The unpredictable nature of whether you’ll be okay […]
Read MoreMetro currently have a series called ‘You Don’t Look Sick’, a weekly series about what it’s like to live with an invisible illness or hidden disability, and I had the utmost privilege of being asked to take part in this. Below, I have copied and pasted my interview but click here to see the article on their […]
Read MoreI hadn’t really heard the term ‘advocate’ until recently. The definition for an ‘advocate’ is: (noun): a person who publicly supports or recommends a particular cause or policy.
Read MoreSo I’ve got some very exciting news, in that a company (Barcroft TV) have asked me to do a short video about my ostomy bag and Ehlers Danlos Syndrome. I’m so pleased with it and I really hope that it’s going to help others who may see it.
Read MoreThis is a question that comes up from time to time. Why do I have to post pictures of it online? Do I do it for likes? For comments? For attention? Why do I not care having it out on display when I’m out and about in the summer?
Read MoreSo it’s been a while since I last posted on this website. I started doing this blog to help others who might be in a similar situation as I was; having Ehlers-Danlos Syndrome Type 3 (Hypermobility Type) and being unable to eat due to a malfunctioning digestive system.
Read MoreI’ve now been home for 2 weeks, giving me a chance to enjoy the unusually warm weather! So far, things have been going okay but there have been some incidents along the way – but as things are still very new, there’s bound to be one or two slip ups of some sort!
Read MoreFirst of all: I am so sorry it has taken me so long to do this! Things have been fairly busy and I haven’t felt up to doing another blog post for a while – but I’m finally doing it!
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Charlotte Amy Louise 